May 18, 2021

Maori News & Indigenous Views

Researcher explores end-of-life care for Maori – Massey University

3 min read


Attitudes to death and dying have a cultural dimension, so how well does end-of-life and palliative care encompass Maori culture, spiritual beliefs and traditions?

koti-diane-03Massey University psychology doctoral student Diane Koti (Ngati Porou, Ng?ti Mainapoto, and Te Whanau ? Apanui) is investigating how current end-of-life care models can better incorporate the needs of Maori patients and whanau.

For many Maori, palliative care and hospice are new terms and phenomena, she says. Many Maori have not heard of, or encountered, or had any need to access palliative care and hospice services.

Ms Koti was recently awarded the Rose Hellaby 2014 Postgraduate Scholarship at a ceremony at the Auckland Art Gallery Te Toi o Tamaki for her research on end-of-life and palliative care for Maori. The Manawatu campus-based researcher aims to build on her Masters research, in which she talked to terminally ill Maori patients and their whanau about their end-of-life care experiences. Her research suggested a need for further understanding of the process of end-of-life and palliative care, particularly from a historical perspective.

Until her grandmother passed away five years ago from terminal cancer, she says her wh?nau had never encountered hospice care and were unfamiliar with what it was. In this sense, having a stranger tend to their dying relative albeit a kindlly professional was at times disconcerting, she says.

Her observations sparked her interest in palliative care, and this deepened when she went to work for the hospice where her grandmother had been a community outpatient.

While full of praise for the service and support Hospice New Zealand offers patients and families, she observed gaps in its understanding of Maori beliefs, protocols and experiences of death and dying. These can include the involvement of a large number of family members providing physical care, karakia (prayers), waiata (song) and tangi planning when a person is nearing the end of their life.

She envisages her study will contribute to future planning. The Maori population is growing,

is youthful although getting older, so it can be assumed that Ma?ori will be potential high future users of New Zealands palliative care services, she says. We need to ensure that palliative care and hospice services, facilities, and health professionals are competent in meeting the needs of Maori. Health professionals should be educated in the unique cultural needs and considerations when working with, and caring for, Maori.

In rural areas, particularly, a lack of resources has been identified as hampering palliative care delivery, and for urban areas palliative care is frequently detached from the appropriate cultural needs of indigenous peoples, she says. Theres a current lack of Maori staff in both clinical and non-clinical advisory roles, she says.

Ms Koti hopes her research will lead to the development of a Maori model for end-of-life care based on kaupapa Maori principles. Her ultimate dream is to establish a kaupapa M?ori end-of-life care facility on the East Coast near Gisborne, in honour of her grandmother, that caters for Maori and non-Maori and provides training in culturally sensitive end-of-life care.

Ms Koti is supported by her supervisors Associate Professor Ross Flett, Dr Natasha Tassell-Matamua, and Dr Hukarere Valentine.

Read Diane Kotis Masters research here.

To read more, please click here:Massey University link


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